Two sisters brutal battle with bone disease

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Báo Dân Trí English - 49 month(s) ago 22 readings

Two sisters brutal battle with bone disease

Bone disease has deformed the arms and legs of two siblings who struggle to cope and battle for survival.

The disease bends the sisters’ legs and arms, thus, their mother has to use a tray for them to move Making bracelets and necklaces, drawing and colouring is the sisters’ only joy

Brittle bone disease has ended the ability for them to go to school in District 12 of Ho Chi Minh City where they live.

Truong Thanh Nga, 18 years old, has battled the disease since she was born, and her younger sister Truong Thanh Ngan, 13 years old, has suffered since first grade. The disease is hereditary from their paternal family.

Since being affected by the disease, they cannot move. If they simply crane their body ahead to hold something, they can suffer from fractures in their legs.

Their father, Mr Binh, also has osteomalacia (soft bones), thus, he can not do any heavy work. Currently, he is working as a guard and also picks up tennis-balls at a flower-garden in District 9.

The mother, Mrs. Tam, has to take care of her daughters every day and cannot leave them alone. She must try to keep their health in good condition constantly because if they just sneeze, their ribs can break. Mrs Tam often strings bracelets and necklaces to earn money.

Watching their mother, Nga and Ngan learn to thread bracelets and necklaces, and also purses, but their products are not sophisticated enough to be sold. They hope that one day these products will be sold to help earn some income.

The girls make the handicraft products to forget the disease which continues getting worse. Without tonic, their bones have become more brittle and continue fracturing.

The couple sold their house to bring their daughters to the hospital and now their family is living in a dilapidated house of a relative. They have to face flooding whenever it is rainy. At that time, Mrs Tam has to put Nga and Ngan on trays to move to their grandfather’s house.

Nguyen Thi Be Hai, head of the women’s union of An Dong Ward, District 12, said her union cares about the conditions of the girls and has proposed a small subsidy for them. “But, we need more support to help them in the long term. Luckily, they can still use their hands.”

Their dream is to open a stall and receive some training.

Charitable donations please send to:

1. Do Thi Hoai Tam:0814/3D Area No. 3, Group 46, An Phu Dong Ward, District 12, HCM City. Phone number of grandparent of Nga and Ngan: 08. 6277 0143.

2. Compassionate Hearts Charity Fund – Dan tri Newspaper (Hanoi)

No. 2/48 Giang Vo Str., Dong Da Dist., Hanoi (beside Kim Ma petrol station)

Tel: 04. 3. 7366.491/ Fax: 04. 3. 7366.490

Email:quynhanai@dantri.com.vn

* Vietnam Dong Account information:

Account holder: Bao Khuyen hoc & Dan tri

Account number: 10 201 0000 220 639

With Bank: Vietnam Joint Stock Commercial Bank for Industry and Trade – Hoan Kiem Branch

* US Dollar Account information:

Account holder: Bao Khuyen hoc & Dan tri

Account number: 10 202 0000 004346

SWIFT Code: ICBVVNVX106

With Bank: Hanoi Joint Stock Commercial Bank for Industry and Trade

3. Representative Offices:

Ha Tinh representative office: 46 Nguyen Cong Tru, Tan Giang Ward, Ha Tinh City. Tel: 039.3.857.122

Da Nang representative office: 25 Nguyen TriPhuong, Thanh Khe Dist., Da Nang City. Tel: 0511.3653.725

Ho Chi Minh City representative office: 40/17/16 Nguyen Van Dau, Ward 6, Binh Thanh Dist, Hochiminh City. Tel: 08. 35107. 331

Can Tho representative office: 53/13 Ly Tu Trong, Ninh Kieu Dist., Can Tho City. Tel: 071.3.733.269

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